Moments

Since my last post about entering hospice, there have been some powerful, meaningful moments.  I’ll share those below, but first wanted to comment on hospice.  I have watched a lot of friends die.  And in seeing this happen, I’ve seen so many that wait until they are suffering before
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280 pills later…

Since my last post, a lot has happened.   I’ve been popping pills. I’ve swallowed 280 pills, most of which are experimental; umm I guess “investigational” is the PC term.  I’ve taken 10 pills in the morning and 10 pills at night every day for 14 days.  Now I have one week off to
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I’m a lab rat

I’m officially a lab rat Yesterday, just before dinner I had chills and a low grade (100.8) fever.  I ate and my mom and I left for Indy (a two hour drive).  Thankfully ibuprofen took care of the fever, but about half way into our trip I experienced a burning pain in my axilla (armpit
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Take Time

Take Time My high school youth group leader gave me the picture below, I took it with me to college, and then always had it on my desk during my career at Parkland College.  While cleaning out the basement today, I found it…and it couldn’t be truer right now: Take Time To Work…it is t
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Super Powers

The other day Corbin and I were discussing what super power we’d pick, if we could have one.  He firmly insisted he’d pick being able to fly and I said I’d choose to be invisible.  While those super powers aren’t possible, I’ve recently stumbled upon one that is: x-ray vision. Frequen
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Clinical Trials, Round 1

Clinical Trials, Round One Today my mom and I met with a prominent oncology researcher in Indy to review my options.  We also met with a Phase I researcher to talk about additional options.  I’ve added the links, in case you want to test your smarts at reading clinical trials. Behind
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Pre-order What You Might Not Know

May has been absolutely (you guessed it!) LEGENDARY!  And we’re only half way through!  The first weekend in May, my sister, Sara, married Noah.   Their wedding was pure joy!  I was so thrilled to be her maid of honor.  Another bucket list item checked off!  A year ago, when Corbin wa
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I’ve been quiet…

I know I’m overdue for an update.  Sometimes when I don’t post it’s because I’m caught up in the moment with life events.  Other times when I don’t post it’s because typing the words out makes it that much more of a reality – that’s been
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Missing Mable

In cancerland, the best news is always hearing there is No Evidence of Disease (aka NED, aka remission).  The next best thing is having Stable Mable for a BFF.  While the cancer isn’t shrinking, it isn’t growing.  Everything is status quo.  And although I’ve never met NED, I have been
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Metastatic Breast Cancer and Mental Health

In the past 5 years, I’ve worked to bring awareness to young women diagnosed with breast cancer and of women diagnosed with metastatic (Stage IV) breast cancer. Both populations are understudied, underfunded, and often unacknowledged in the main-stream breast cancer. This past week a
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