The other day Corbin and I were discussing what super power we’d pick, if we could have one. He firmly insisted he’d pick being able to fly and I said I’d choose to be invisible. While those super powers aren’t possible, I’ve recently stumbled upon one that is: x-ray vision.
Frequently people tell me “Jen, you look SO good!” While this is reassuring, it doesn’t give me an ego boost. I can also read between the lines, “How is it you look so healthy/normal, yet you have terminal cancer???”
Lately I’ve been having increased pain in my mid-back on the left side, just below my scapula. I met with my radiation oncologist who was able to pull up my last PET scan and clearly found the big tumor on a rib that is causing the pain. In meeting with him, I decided to snap the picture below. That’s my last scan, 3 weeks ago. With the exception of my heart (the big black spot in the middle), all of the black spots are cancerous tumors.
How’s that for Xray vision? Does it give you a new idea of metastatic breast cancer?
Yesterday my mom and I met with the research oncologist in St. Louis. There is one clinical trial. They have to send the tissue sample to Italy (I asked if I could chaperone its trip-denied) and it takes 4-6 weeks to get the results. And, only 2-5% of patients have the right biological marker to get in the trial.
So, that pathology is being sent off. And we’re waiting. Today I learned due human or technologic error, the tissue sample still hasn’t been sent to Indy. This was supposed to happen a week ago. Indy claims they requested it last week. My local cancer center claims they never got the request. While it’s extremely frustrating, in the end, it doesn’t really matter because the trial requires a 14 day wash out after radiation. I started radiation today, which will go through Tuesday. The radiation is palliative, the goal is to control the pain.
So, the rest of June will be spent on a break from chemo, getting back pain under control, and waiting for the results. Please pray that I qualify for this study in Indy (Door #1 in previous post).
Thank you for all the support, and the special support (you know how you are!). I am so blessed to have so many amazing people in my life!
PS–I’m curious, what super power would YOU pick?