Clinical Trials, Round 1

Clinical Trials, Round One

Today my mom and I met with a prominent oncology researcher in Indy to review my options.  We also met with a Phase I researcher to talk about additional options.  I’ve added the links, in case you want to test your smarts at reading clinical trials.

Behind Door #1/Phase II trial:

My tissue sample has to be sent to a lab in California for testing.  If it tests with the correct clinical marker, then I’m eligible to go forward and consent with the trial.  FYI- so far zero of 12 patients have tested with the correct marker, so while the trial is very attractive, it’s also a slim chance.

 

Behind Door #2/Phase I trial:

This trial is a chemo I’ve had before (Xeloda) combined with an investigational drug.  They think that the investigational drug will make the chemo more powerful.  This trial only takes 3 people at a time and is a dose escalation trial.  It is currently full and will have an opening in late June/early July.

 

Behind Door #3/Phase I trial:

This trial is for advanced solid tumors (ie, not just breast cancer).  Although it is a Phase I, they have found the optimal dose.  The side effects on this trial appear to be minimal.  The first month of the trial require frequent (2-3 times a week) trips to Indy (2 hours each way).

 

Next week I head to St Louis (3 hours each way) to see what options are available, and then it is time to decide which trial to sign up with.

 

Many have asked my next goal…I’m making it big, sell 1,000 books!  So, if you haven’t read it, please do.  And, if someone you know asks how I’m doing, please encourage them to get a book.  Right now I’ve sold about 350 books, so I have quite the way to go.  ORDER HERE

Thank you for the prayers, support, lunch dates, girl’s nights, and texts/emails/cards.  I truly have the most supportive and loving community of people surrounding my family and me.

Xoxo

Jen

Jen

Living legendary as a mom with Stage IV breast cancer. Author of Learning to Live Legendary and What You Might Not Know: My Life as a Stage IV Cancer Patient.

  1. stacy Reply

    Jen – I think you have perfect markers :), hehe. Praying for the right trial at the right time. SO much love to you!

  2. Gay Briggs Reply

    When in Champaign visiting my sister, I had the pleasure of meeting you at the YMCA book
    signing. As you know I have been following your FB page and it was an honor to finally
    meet you.
    I want to thank you for being a huge voice and inspiration for all people. Most of all you are such a wonderful, loving, caring role model for all Mothers! I marvel at the love and devotion you have for your young son, Corbin. Bless you!

  3. Shirley Kolb Reply

    Hi Jen,
    Your book is amazing. I have read parts of it several times. Thanks so much for writing it. I know it will help so many people. The part about Grieving was very moving, especially since I knew the person you were talking about from Parkland. I had often thought about how you might have felt as friends and sisters in Cancerland had passed away. And hearing how your family copes – you can truly see how their faith in the Lord sustains them as it does you. It also impresses me how important it is to continue praying, not only for you but also for those close to you.

    I continue to pray for you every night. I will be praying that the right clinical trial opens up for you. And for the Lord’s presence and peace to be with you.

  4. Tammi Clifton Reply

    Dear Jen – My Mom and I will continue to pray for you, Corbin, and your entire family, that God will touch you with his grace and you will be accepted into the next clinical trial!! Much love and continued prayers and healing thoughts!!

    God Bless, Tammi and Linda xoxo

  5. ChrisAnn Richards Reply

    Dear Jen: Wow – you have options…I am praying you get in the one that is just perfect for you! I have tons of questions so I won’t bother asking them here.

    My CT Scan from yesterday showed one lesion (and only one) that returned in the lower body so I qualify for the MK 3475 trial !!! We screamed so loud this afternoon when we found out that the cats ran to all parts of the house. Next biopsy.

    I know you must be exhausted. And I am tempted to say “hang in there”…but you know that I mean it.

    Love, ChrisAnn

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