Next Steps

Applying for clinical trials is like looking for a job, only I’m looking for an extension of my life, not a paycheck.  I search the trials, look at the qualifications.  In the past 4 1/2 years, I’ve learned a lot of medical lingo so I can usually figure out what they’re looking for.  Most trials I look at I’m “over qualified” because I’m too heavily pre-treated (ie, had LOTS of chemo).  Of the few trials that I might be eligible for, I must email the contact, include a Cliff’s Notes version of my treatment and wait to hear back.  I’ve already gotten rejection emails from two because I’m too heavily pre-treated.  I’m holding out hope for one.  There isn’t an opening in Illinois now, but hopefully by the end of the summer there will be.  I’m waiting to hear if I can “pre-qualify” and have the oncologists review my records now, rather than wait until they open a site in Illinois.


I really appreciate the outpouring of love; I’ve read and re-read all the messages.  It helps get through those dark times like this most recent one.  We were blindsided by the news of progression since I’ve felt so “healthy” lately.  I’m trying to maintain Corbin’s status quo so that his world isn’t rocked by this.  If you’ve emailed, text, or left a message and I haven’t gotten back to you, please know that I’ve read them.  I’ve been overwhelmed by the horrific news, but I’ve also been overwhelmed by the flood of compassionate remarks and messages.  As one person so brilliantly put it: “When I see you going through this horrible thing, I know that it will be my daughter tomorrow or my wife or one of my sisters the next day.“


I’m sharing my journey in hopes that eyes will be opened, people will be educated, and hearts will be touched.  At the end of the day, it isn’t about me; it is about all of us as a human race and the epidemic of cancer.  Many have asked how you can help…first, KNOW YOUR BODY.  Know what’s normal and when things change.  Second, spend time with your loved ones.  Put down the phone, turn off the TV, and spend QUALITY time with those you are close to.  Lastly pray.  Even if it’s been awhile or you’ve never prayed before.  Something as simple as, “Lord, please help.”  While we don’t understand why this is happening, God does.


I’m really looking forward to sharing both of the June Delightful Dozen in my next post, both were LEGENDARY!



Living legendary as a mom with Stage IV breast cancer. Author of Learning to Live Legendary and What You Might Not Know: My Life as a Stage IV Cancer Patient.

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